Initially I had plans to write about some of the difficulties of starting an Etsy shop when you are basically housebound. That was until my uncle called and said that he was coming to deliver some stuff to our house this afternoon. Even though he was in the middle of emptying my grandmother’s apartment due to her recent death, the fact that he was making the near 3 hour round trip out of the blue struck me as odd. Due to another potential reaction to the super safe iron for pregnant women, my appointment for Monday’s iron infusion had been delayed for another week. And since he and my aunt had made the long trip to our house Sunday to deliver a bunch of furniture, this sudden, unexpected delivery caught my attention, and I could not help but think that God was sending him to our house for a bigger reason.
For the next two hours, except for the fact that both my mother and I felt miserable, things went smoothly, and it seemed that my initial instincts were unfounded. That was until I remembered that the day before we had missed a call from the hospital nurse to see how my mother was doing after her four or five day stay in the hospital almost a week ago due to extremely high blood pressure and chest pain. I did not think too much of the call, and decided that despite the pain I was in, I had better clean as many of the dishes before my uncle arrived, until my sister came rushing over with the phone and insisted that I needed to talk to the hospital nurse.
Have you ever had one of those days where your mind is bursting with ideas and plans, but your body feels like it is weighs a ton and all you want to do is crawl into bed. For me today is one of those discombobulated days where my mind is longing to work. I had a post that I wanted to share about the day my family got Happy. But even though half the post is already composed in my head, my tired and achy body rebels at the thought of sitting down and trying to type out the lines.
So instead I thought I would share a poem that I had written a few years back that was inspired by the frustration of having to deal with the debilitating fatigue created by chronic health issues like iron deficiency anemia, fibromyalgia, and more.
Finally after years of trying to get a doctor to send me to the hematologist and an unexpected extra week of waiting, I was able to get my iron infusion. I was supposed to get my infusion last week, but the day before my appointment I got a call from the doctor’s office saying that there would be a delay in my appointment. When I asked why, I was told that they did not know, but maybe they overbooked.
I must admit that I took the news rather hard. I was feeling horrible. I was starting to feel very close to the way I did when my iron stores dropped down to less than 3. I had reached the point where even the slightest activity, such as taking a shower or getting my supper left me winded, and I was so worn out that I could barely lift my head off of my pillow. I knew that I had reached the point where getting the infusion was a must, and now I was going to have to wait another week, with my iron dropping, to get some relief. My heart fell and my eyes began to water. I must admit, that if it were not for the fact that I was sitting outside of Happy’s vet, I would have been cried, because in that moment I really questioned if I would ever get the infusion.
Every day for this past week, I would wonder if the phone was going to ring and I would be told, sorry, we have to reschedule again. Every time the phone rang I was afraid that it was them. Even Thursday morning, I was so concerned that my appointment had been canceled that I called to make sure that it had not been changed. It was not until the IV needle was in my arm that I finally allowed myself to believe that I was finally going to get some relief.
And did I ever need the infusion. Since it was my first infusion at that office, the doctor had to see me before I could get the infusion. And I found out why I was starting to feel like the time my iron stores had dropped to less than 3, my stores were getting very close to that level as they had dropped to a dismal 4. With an iron saturation of 4 and a hemoglobin of 10.1 and dropping, no wonder I could barely lift my head off my pillow.
Already I can feel some difference in my energy levels. While my energy is still low, if it were not for the miserable side effects of getting an iron infusion such as terrible muscle cramps and pain and headaches, I would probably be able to do 5 times the amount of work in a day than I have done for the last two or three months. Granted that is barely anything in comparison to a normal person, but at this point it certainly feels like a major achievement.
But while I am very thankful for the relief of that this infusion has brought me, I have a new concern. At the doctors office was told why my appointment was canceled, and the reason is very concerning. It turns out that my appointment was not cancelled due to insurance or overbooking, but a far more serious reason. Short supplies.
Yes, to the list of items that are in short supply you can add iron. And like baby food, getting an iron infusion can be the difference between life and death. Right now the supply is so low that they are having to reschedule patients and where they would give them one infusion every week for several weeks, they are having to put a week in between.
While getting my infusion I heard the nurse tell another patient that the doctor had wanted to give her a certain type of iron, but had to change it to another because the supply of that type of iron was too low. It was so low that they had only been able to get 20 bags and they had used 12 of them so far today. No wonder they had to reschedule my appointment. Leaving me with a new concern, that as the cost of gasoline rises, and the supply chain becomes more precarious, how long will it be before the iron infusion that I and so many others need to keep us alive, will become a causality of this volatile market and disappear.
Good news, hopefully anemia will not be controlling my day much longer! I am scheduled to get my first infusion this Thursday. Which is great, because even with the occasional iron pill and daily drinking of the prune, Rasin, grape, and date drink, my hemoglobin is quickly dropping, and it is becoming harder to do even simple task like eating without becoming short of breath. My iron is getting so low that even though I am spending a few minutes in the sun nearly every day to get some natural vitamin D, I am becoming as pale as a ghost.
I am still not a fan of spending most of my day hooked up to an IV, but at this point it is an answer to prayer. It will be so nice to be able to do simple things like stand up and walk down the hallway or get something out of the microwave without becoming winded. While there are many big things, I want to do like complete 5 minutes of exercise on my total gym without gasping for breath or spending ten or fifteen minutes a day completing my next poetry or story book, it is the simple things of life that I am looking forward to.
Each time my iron drops so low, I am reminded how easily we forget the many little gifts that God has granted us. The ability to eat without feeling like you are going to suffocate, to bend down without fearing that your breath will be completely taken away, or comfortably walk a few feet without hyperventilating are all too often taken for granted. Too often we spend our lives chasing the big gifts, and think ourselves ill-used and believe that our prayers have been ignored because we do not receive the big bonus that we deserved, the funds to take our dream vacation, get a promotion, or some other desire of our heart.
Hurray, after more than a month since I got my lab results back showing that my iron saturation had dropped to a 4 (the low end of normal is 15), I finally have an appointment with the hematologist. I wish that I could say that I was looking forward to getting an iron infusion. But while I appreciate the temporary increase in physical and mental energy an iron infusion brings, I am not a fan of having to spend 6-8 hours getting an infusion, and the uncertainty of how I will react. To make matters more difficult, this will be the first time that I have to get an infusion without the companionship and protecting watch of my father.
But even though I do not like getting an iron infusion, my stomach cannot tolerate taking iron pills for more than a few days at a time. After a few days it makes my chronic nausea so strong that I dread meal time to the point that I at times I am delaying and even skipping meals. To alleviate the nausea I have to stop taking the nausea causing my iron levels to sea saw up and down, and slowly causing my iron stores and iron saturation to drop to a point that I can barely lift my head off the sofa and where some days even a few steps leaves me gasping for air.
Fortunately, while I have been waiting for my referral to reach the the hematologist, I found a couple of natural ways to help me get enough iron to help me do one or two task and breath a bit more comfortably. One natural remedy is to drink a bit of beet juice mixed with another juice like grape or apple juice. Mixing it with another juice is important as on its own, probably due in part to its strong flavor, it can be hard to keep down. But mixed and diluted by another juice like apple or grape it become more tolerable.
It was a less then delightful way to spend a birthday, more than 3 hours in the doctor’s office. But it was a necessary misery as it turns out, and not unexpectedly at least to me, that my iron stores are low and my iron saturation at 4 percent is very low.
Even though my hemoglobin was normal on my last visit, I knew that my stores were getting seriously low. Thanks to the serious bouts of nausea and my allergies to food dyes, it is nearly impossible to keep my iron in check. The low dose of over the counter gentle iron helps to keep my energy up a bit. But all it takes is a few days off to try and settle my stomach for my iron levels to come crashing down. Lately it is only a matter of a few days without iron pills before I become as pale as a ghost, find it hard to lift my head off the sofa arm, I struggle to catch my breath, I start forgetting even the simplest of words, and my limbs become ice cold.
So like it or not, it looks like this anemia inspired acrostics is the perfect poem of the day. While I hate having to spend an entire day stuck in the infusion center, it looks like getting a referral to the hematologist and enduring 6 to 8 hours for an iron infusion is back to being a necessary evil.
Worn is usually the perfect expression for how I feel during the summer heat. There is something about the constant heat that leaves me feeling so tired. So I thought I would share a poem that expresses the feeling of the day, as I look forward to the relief of cooler weather.
Is it just me, or should the saying it never rains, but is pours should be changed to it never rains but it hurricanes. Because that is the way that it feels like right now. First it was a string of severe health set backs, and before I could catch my breath, it was six painful losses, one right after another.
Now, when it seemed like I might have time to catch my breath and finally begin to grieve, the bad news hits that it looks like my little puppy is following my Father’s footsteps. His sugar is high and his liver and kidneys are not doing so good. They are beginning to fail him. He has lost 8 or 9 pounds and that is a lot for a 28 pound little dog.
We have gotten the medicine and started treatment. Right now there may be hope, at least we hope that there is some hope. But it is too early to tell. For the next few weeks it will be a waiting game to see how Happy responds to the treatment.
During times like these it is so easy to get discouraged. To feel like all hope is lost and that joy is forever dead. Knocked down and tested to the point of breaking it seems like tears and sorrow are your undesired lot. In moments like these, where the pains and sorrows of life press down upon the heart seeking take away one’s breath, it is easy to forget that the pains of this life are for a moment. To forget that there is hope, because one day soon, sin will become a distant memory.
In the hour of darkness it may seem like sin is wining. That it is quickly going about swallowing up hope and happiness. But the good news is that the hour is quickly approaching when the tables will turn. Sin and its cruel companions, want, hunger, pain, sickness, and death, will be swallowed up. Truth, justice, hope, mercy, grace, and life everlasting will win the day.
Right now the enemy of soul’s is angry. He sees that his time is short, and like a roaring lion he is going about trying to turn the eyes of all from their only hope. He is trying to crush the hearts of men and keep them from looking up and through the eye of faith beholding the approaching promise of the great day of salvation.
He sees that final battle is getting ready to begin. He knows that it will not be long before the last decisions will be made, before the last heart will take their stand for or against God. And then the final crisis will begin, and just when it seems like he has gotten the victory, Jesus will appear and fill the heaven’s with His great glory.
Oh right now it is so easy to lose sight of that wonderful day. The pain and fears of this life seem like they are going to swallow us up, and there is no reason to smile anymore. But it is at this very moment that we need to look up. We need to look up with the eye of faith and behold the promised day of salvation. Because when we do our burdens will be lifted and our pain eased. Yes, the tears will flow and the heart will ache, but even in this fearful hour peace can and will fill our hearts as we set our sights not upon the darkness of the tomb, not upon the fearful uncertain of sickness and want, but upon the glorious day when this world will pass away and Heaven with its wondrous, unspoiled, and unfading glorious will be our home.
Disclaimer: This article contains an affiliate link to Maze Crazy. If you should choose to purchase it, I would earn a small commission at no additional cost to you. I have used this product for nearly a year before deciding that I liked this program, and becoming an affiliate.
About a year ago I learned about a program called Maze Craze. Maze Craze is a program that allows you to create square mazes and with or without a solution, that are simple enough for a very small child, to the extremely difficult.
Maze Crazy allows you to make very simple mazes that are perfect for very young children, to extremely difficult mazes that are perfect challenge for the serious puzzler.
The nice thing about this program is that you keep the rights to the mazes that you make. This means that you can not only make mazes for your own personal enjoyment, but to sell as well. You can use your mazes to create maze or puzzle books, activity sheets, or designs for cups, pillows, t-shirts, and more.
Here is an example of an experimental maze book, where I took a poem about adventure, pictures of my adorable dog Happy, and some of the simpler mazes that I had created using Maze Crazy, to create a unique children’s book.
The mazes are created as convenient PNG files that can easily be inserted as is, onto a pdf making file such as ADOBE, Smallpdf, or Sodapdf and transformed into a file and uploaded to KDP. If you would like to make the mazes more interesting, the PNG file can be uploaded to a program like Canva or affinity publisher where other elements can be added to make your puzzles more interesting.
With a bit of imagination, you can turn a simple square maze, into an exciting adventure.
What really makes this program exciting is the fact that the creator of Maze Crazy is working to improve this program. Taking the maze crazy experience to the next level by giving the maze creator the option to turn the standard line maze into a maze made out of flowers or clouds.
And an addition that has really improved the value of Maze Crazy, you now have the ability to alter the maze the shape and path of the maze. Giving you creative control over both the shape and style of your maze.
Once again, if you want to increase the creativity of your puzzle, you can upload your maze as a PNG file in a program such as Canva or Affinity Publisher. Add a decorative background, insert some interesting elements such as numbers, letters, symbols, or pictures in or around your maze. And before you know it, you have created a unique maze that can tell a story, spread a message of love, or the adventure of your choice.
With Maze Crazy, you have the power to tell the story you want.
Summer, that great time of year when warm breezes blow and sunny days beckon one and all to roam a vibrant green world as busy birds flutter through the trees singing their merry song of life. Where visions of melodic waves crashing against the shore and refreshing dips in cool ocean waters fill the imagination.
But for me summer is a time of frustration. As the thermostat rises and the humidity climbs so does the deep ache in my bones. Instead of lounging in a chair by the refreshing waters of a crystal clear pool, summer finds me curled up in a tight ball with a steam of tears threatening to run down my pain contorted cheeks. And in sorrow I watch from the sidelines as the days of summer slip away, never to return.
Frustrated I dream of long walks by the ocean, and of typing by the pool as I sip a refreshing glass of ice cold pineapple fruit shake. My hot brow desperate wishing for the chance to cool off in a shady corner of the pool, even though I know that my achy bones would never allow it.
Haunted by images of the life I long for and worn out by the increasingly debilitating ache that sores with the thermometer, disappointment threatens to engulf me. Oh how I long for a normal life, to know the joy of living with strength and purpose instead of tip toeing around my endless discomfort. As I look at my empty platter and think about how empty my life is of the active joy that I long for, a deep depression threatens to take hold.
But it is at this moment that God in His mercy steps in. With tender love He points my throbbing head upward and reminds me that trying as these days of frustration are, this need not be my unhappy end.With love he reminds me of the promise that one day soon I may rise like a mighty eagle unhampered by the chains of pain that currently hold me back.
Slowly, as I take my eyes off my current suffering and by faith behold the glorious days of promise, my frustration gives way to joy. And although pain still racks my body, my heart begins to sing songs of praise. As my imagination is carried past the fleeting dreams of an earthly summer and carried to that which shall stand the test of time. No longer concentrating upon the sorrow of having been born into a world of pain, I look ahead to that precious day when the clouds do part to reveal a vast host of angels whose song makes the world to tremble. And at last my weary burdens I shall be able to put down, as with the freedom of endless youth I bounce, and a heart filled with joy I fall before my Redeemer and pour out my soul in gratitude that my days of pain and heartache He melted away and transformed into the wonder of the dawn of endless, pain free youth!