Tired, Tired, I Feel so Tired is a poem that I wrote during one of the flare ups of my chronic anemia in an attempt to express the deep fatigue that was robbing me of the freedom to live life to the fullest.
Worn, sadly this poem is the perfect summary of the past few weeks. Tired and worn before the day even begins, all I can think of is the delight of crawling into bed and taking a very long nap. My mind full of task pushes and prods me to work, reminding me of all the things that must be done, but like a car with a drained battery, it is all that I can do to sputter to life for a few moments and crawl a few feet before limping to the side.
I recently read an article entitled, “No Fatties”: When Health Care Hurts by Carey Purcell which touched on the biases in care that fat people can face when seeking medical care. As I read the various stories of those whose pain had been ignored, sloughed off as the result of their weight, and sudden, unexplained weight gain being dismissed as nothing more than the result of eating to many burgers, I could not help but recall my own experiences with the medical community that have left me less than thrilled whenever it is time to visit the doctor.
The flurry of emotions raised by this article run strong and deep through my soul like a quiet river that with the slightest rain rises into a ragging torrent. Most days I quietly forget the pain, as I focus my mind upon the daily struggle to keep meaning and purpose in my life along with the battle that comes with living in chronic pain. But there are days that wound rises to the surface and the tears threaten to come rolling down. In order to silence the pin pricks of irritation at being treated as somewhat less than human, I have done the unthinkable in that I have to a great degree shut down the person I once was. I have allowed the battle to alter the course of my life and erase the dream I once cherished.
The change began with simple steps that were almost imperceptible. Little moves such as changing the channel whenever a medical clip or episode of a favorite show came to close to my own experience and threatened to touch a chord I would rather remained silent. Soon I was no longer watching once loved shows like Emergency, Mystery Diagnosis, Quincy ME, programs that had inspired me to hope that one day I might help the suffering and sick too, because to me they had become nothing more than idle tales. Ultimately it progressed to closing the books and shutting down my hopes and dreams of becoming a doctor or at a nurse practitioner.
I know that it has been quite awhile since my last post. I have wanted to post for quite some time, but have been enduring a rather strong flare up that has left me curled up in a tight ball for days on end. Leaving me little time to accomplish important task like helping with the dishes or assisting with the family budget. By the time I was ready to log onto Word Press my small bank account of energy had been overdrawn and it was not long before I had to turn off the laptop and curl up in a tight ball once more.
The past few months have been far from easy. Filled with long days of pain, fatigue, miserable migraines, the intense body chill of Reynolds, and a slowly increasing heart rate it seemed at times like someone pressed the pause button for my life. Though it has not been easy, I had one great comfort. The sustaining trust that I was not going through the hour of trial alone. My confidence that every groan, every ache, every tear of misery had been marked by Jesus.
In those long hours of suffering I found myself often thinking of what it must have been like for Jesus during those last few hours before the cross. My iron low leaving me cold and struggling to get the strength to walk the few feet from my room to the sofa, I wondered how after being beaten multiple times and having already lost a fair quantity of blood, Jesus endured what must have felt like an eternal walk from Jerusalem to Golgotha. Then, weak and in great physical pain he was hoisted upon a crude cross.
Due to a miserable infection I have been unable to write for the past few weeks. I knew for a month that I was developing an infection but it was one of those cat and mouse type of infections that left me miserable one day, and the next the symptoms seemed to subside. My nasal cavities felt miserable, but the pressure was too mild for me to go to the doctor and confidently declare that I was having another sinus infection.
Then a couple of Sunday mornings ago, I woke up with a full fledge infection. I was dizzy, feverishly achy, had a miserable head ache, and my sinuses throbbed like base drums. At that point I was more than confident that I had an infection and was eager to go to the urgent care and bring an end to my misery.