Posted in Anemia, life, Medical, Poems Beginning with T, Poetry, Uncategorized

Tired, Tired, I Feel so Tired

Tired, Tired, I Feel so Tired is a poem that I wrote during one of the flare ups of my chronic anemia in an attempt to express the deep fatigue that was robbing me of the freedom to live life to the fullest.

KB Writes

Tired, Tired, I Feel so Tired

By Katherine B. Parilli

Tired so tired!

My body feels so tired.

Like a weary shorn out rag I walk around in a worn out daze.

My hallow body feels ancient and weighted down from some unseen place deep within;

As if an indivisible foe is sucking the energy from deep within.

th44FQCKDX The tiredness is so deep at times that I feel like a toy that someone removed the battery from.

 

I struggle to stay focused.

I desperately push on,

But my endurance is gone.

Even my hunger is diminished,

As my empty stomach trembles at the wearisome draining thought of food.

 

Oh who would believe that an invisible bug could cut a grown being down so completely?

Could bring them crawling to their knees.

That a microscopic organism could invade a body composed of billions of cells,

And bring it halting…

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Posted in Medical, Poetry, Uncategorized

Worn

Worn, sadly this poem is the perfect summary of the past few weeks. Tired and worn before the day even begins, all I can think of is the delight of crawling into bed and taking a very long nap. My mind full of task pushes and prods me to work, reminding me of all the things that must be done, but like a car with a drained battery, it is all that I can do to sputter to life for a few moments and crawl a few feet before limping to the side.

 

Posted in life, Thoughts, Uncategorized

Procrastination

It seems like I have been meaning to sit down and write a post for months now. I wake up in the middle of the night with my head brimming with things that I long to say, but in the wee hours of the morning who wants to get out of bed? So I do the smart thing and dig deeper into the sheets hoping to fall back to sleep again. Comforting myself with the promise that I will get around to it first thing in the morning. But when morning lights dutifully rouses me from my bed, and I drag my achy bones over to the sofa and pull up my laptop to write, the fatigue and pain makes it so easy to push away my computer and curl up in a ball saying to myself, “A few minutes rest and I will feel more refreshed. After all, there is plenty of time before lunch.”

But of course that little rest soon turns into an hour or two and before I know what has happened it is time to reluctantly drag myself off of the sofa and help my parents make lunch or help with some other small chore around the house. But of course I am not disappointed because the nourishment that lunch has to offer is sure to brighten my thoughts and give my words more force.

But again, before I know what has happened I am awash in a wave of unwanted fatigue that leaves me to dull whited and sleepy to focus on the task at hand. My eyes feel like two heavy weights falling with great force to the earth, and seem to require superhuman effort to keep open. A little nap after a night of painful tossing and turning sings its siren song to my worn bones and before I knew what was happening, I was sound asleep.

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Pain and the need for refreshing sleep lowered my resolve and made it so much easier to listen to the voice of procrastination.

On the days that I was able to wake up refreshed from my short spurt in dreamland, I have often tried to sit down at my laptop and write, but my attention was easily swayed by the enormous list of backlogged chores from the all to common days when migraines, fatigue, nausea, and a sea of other miseries that accompanies autoimmune disorders had won the battle for my attention. And it was so easy to say, “It’s still early, there is plenty to time before bed.” Or so it always seemed, because like a slippery lion hunting its prey, bedtime seemed to leap out of the bushes at the most unexpected moment leaving me to declare, “Oh well, tomorrow is another day.”

Before I knew it, one tomorrow had turned into two, then three, four, five, ten, twenty, until I had lost count of how many times I had given into procrastination enchanting song of, don’t worry, if you don’t feel like doing it right now because waiting a few minutes will allow you more time to think about what you plan to say, or don’t worry if you don’t feel well enough to do it right now because you will feel better tomorrow and will be able to do a much better job.

What I find so amazing about it as I sit down to write this post, is that at first I felt bad, about putting off the task, but as I listened to procrastination’s sweet lullaby, I began to rejoice in the relief that there was some better time, some wiser moment to do what I really wanted to do today. I began not think of reasons to do, but reasons to wait for that better season that never quite seemed to materialize but was always around the corner.

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While there were many times it was not unreasonable to put off for tomorrow the things I wanted and needed to do, I am amazed to think how easy it can become to put off even the most important task when we listen to procrastination’s lulling voice.

Granted, there were some good reasons why I was putting things off. For the past few weeks I have been rather ill. My stomach has been so unsettled that the doctor ordered medicine to help ensure that its contents stayed in its proper place. And some of those mornings and afternoons I spent on the sofa were spent curled up in near tears for the pain I was in. Yet sadly I know that there were some days when it might have taken some effort but with the help of a few pillows to raise me up I could have pulled up my laptop and wrote a few lines, taken a break, and then wrote a little more.

Unfortunately procrastination is a funny master. At first there good reason to delay, such as taking a moment to synthesize ones thought until it crystallized into a more clear and concise form, or to wait until my migraine medicine has worked enough to allow my eyes to endure the glare of the screen. But while it might start with good reason, if this dreadful monster is given too much exercise it quickly morphs into a monster most dreadful. One that if were are not careful has the power to conquer us and forever alter the course of our lives.

Posted in Anemia, life

Energy: A Simple Six Letter Word with a lot of Meaning

Energy, a six letter word meaning 1. the capacity for vigorous activity; available power: 2. an adequate or abundant amount of such power(dictionary.com). Most of us take this six letter word for granted.  Assuming that it has always been there when we need it, and will always be there when the situation demands. Merrily bouncing around without giving thought to just how important a role energy plays in our daily life.  Never realizing that from the moment we open our eyes until the moment we go to bed we are using the precious resources of energy to do even the most mundane task such as blink, cough, hiccup, or breathe.  Jumping out of bed we head straight into our favorite routines little realizing the debt of gratitude we owe to energy as it fuels our daily task, ensures our memories, and guards us from the drain of an unexpected squeal of brakes or unwanted surprise exam.

Continue reading “Energy: A Simple Six Letter Word with a lot of Meaning”