Posted in Anemia, Thoughts

Finally Some Relief

Finally after years of trying to get a doctor to send me to the hematologist and an unexpected extra week of waiting, I was able to get my iron infusion. I was supposed to get my infusion last week, but the day before my appointment I got a call from the doctor’s office saying that there would be a delay in my appointment. When I asked why, I was told that they did not know, but maybe they overbooked.

I must admit that I took the news rather hard. I was feeling horrible. I was starting to feel very close to the way I did when my iron stores dropped down to less than 3. I had reached the point where even the slightest activity, such as taking a shower or getting my supper left me winded, and I was so worn out that I could barely lift my head off of my pillow. I knew that I had reached the point where getting the infusion was a must, and now I was going to have to wait another week, with my iron dropping, to get some relief. My heart fell and my eyes began to water. I must admit, that if it were not for the fact that I was sitting outside of Happy’s vet, I would have been cried, because in that moment I really questioned if I would ever get the infusion.

Every day for this past week, I would wonder if the phone was going to ring and I would be told, sorry, we have to reschedule again. Every time the phone rang I was afraid that it was them. Even Thursday morning, I was so concerned that my appointment had been canceled that I called to make sure that it had not been changed. It was not until the IV needle was in my arm that I finally allowed myself to believe that I was finally going to get some relief.

And did I ever need the infusion. Since it was my first infusion at that office, the doctor had to see me before I could get the infusion. And I found out why I was starting to feel like the time my iron stores had dropped to less than 3, my stores were getting very close to that level as they had dropped to a dismal 4. With an iron saturation of 4 and a hemoglobin of 10.1 and dropping, no wonder I could barely lift my head off my pillow.

Already I can feel some difference in my energy levels. While my energy is still low, if it were not for the miserable side effects of getting an iron infusion such as terrible muscle cramps and pain and headaches, I would probably be able to do 5 times the amount of work in a day than I have done for the last two or three months. Granted that is barely anything in comparison to a normal person, but at this point it certainly feels like a major achievement.

But while I am very thankful for the relief of that this infusion has brought me, I have a new concern. At the doctors office was told why my appointment was canceled, and the reason is very concerning. It turns out that my appointment was not cancelled due to insurance or overbooking, but a far more serious reason. Short supplies.

Yes, to the list of items that are in short supply you can add iron. And like baby food, getting an iron infusion can be the difference between life and death. Right now the supply is so low that they are having to reschedule patients and where they would give them one infusion every week for several weeks, they are having to put a week in between.

While getting my infusion I heard the nurse tell another patient that the doctor had wanted to give her a certain type of iron, but had to change it to another because the supply of that type of iron was too low. It was so low that they had only been able to get 20 bags and they had used 12 of them so far today. No wonder they had to reschedule my appointment. Leaving me with a new concern, that as the cost of gasoline rises, and the supply chain becomes more precarious, how long will it be before the iron infusion that I and so many others need to keep us alive, will become a causality of this volatile market and disappear.

Posted in Acrostic Poetry, Anemia, Poems Begining with A, Poetry, Thoughts

A Few More Days

Good news, hopefully anemia will not be controlling my day much longer! I am scheduled to get my first infusion this Thursday. Which is great, because even with the occasional iron pill and daily drinking of the prune, Rasin, grape, and date drink, my hemoglobin is quickly dropping, and it is becoming harder to do even simple task like eating without becoming short of breath. My iron is getting so low that even though I am spending a few minutes in the sun nearly every day to get some natural vitamin D, I am becoming as pale as a ghost.

I am still not a fan of spending most of my day hooked up to an IV, but at this point it is an answer to prayer. It will be so nice to be able to do simple things like stand up and walk down the hallway or get something out of the microwave without becoming winded. While there are many big things, I want to do like complete 5 minutes of exercise on my total gym without gasping for breath or spending ten or fifteen minutes a day completing my next poetry or story book, it is the simple things of life that I am looking forward to.

I am so tired of feeling like a wilted tree that has no power to fulfill its regal calling and proudly lift its branches toward heaven.

Each time my iron drops so low, I am reminded how easily we forget the many little gifts that God has granted us. The ability to eat without feeling like you are going to suffocate, to bend down without fearing that your breath will be completely taken away, or comfortably walk a few feet without hyperventilating are all too often taken for granted. Too often we spend our lives chasing the big gifts, and think ourselves ill-used and believe that our prayers have been ignored because we do not receive the big bonus that we deserved, the funds to take our dream vacation, get a promotion, or some other desire of our heart.

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Posted in Acrostic Poetry, Anemia, life, Medical, Poems Begining with A, Poetry, Thoughts, Uncategorized

Anemia: One Step Closer to an Infusion

Hurray, after more than a month since I got my lab results back showing that my iron saturation had dropped to a 4 (the low end of normal is 15), I finally have an appointment with the hematologist. I wish that I could say that I was looking forward to getting an iron infusion. But while I appreciate the temporary increase in physical and mental energy an iron infusion brings, I am not a fan of having to spend 6-8 hours getting an infusion, and the uncertainty of how I will react. To make matters more difficult, this will be the first time that I have to get an infusion without the companionship and protecting watch of my father.

But even though I do not like getting an iron infusion, my stomach cannot tolerate taking iron pills for more than a few days at a time. After a few days it makes my chronic nausea so strong that I dread meal time to the point that I at times I am delaying and even skipping meals. To alleviate the nausea I have to stop taking the nausea causing my iron levels to sea saw up and down, and slowly causing my iron stores and iron saturation to drop to a point that I can barely lift my head off the sofa and where some days even a few steps leaves me gasping for air.

Fortunately, while I have been waiting for my referral to reach the the hematologist, I found a couple of natural ways to help me get enough iron to help me do one or two task and breath a bit more comfortably. One natural remedy is to drink a bit of beet juice mixed with another juice like grape or apple juice. Mixing it with another juice is important as on its own, probably due in part to its strong flavor, it can be hard to keep down. But mixed and diluted by another juice like apple or grape it become more tolerable.

Continue reading “Anemia: One Step Closer to an Infusion”